All your Cystic Fibrosis (CF) medical resources in a single place! Compare your symptoms or treatments to other patients like you, and see if they have more efficient treatments with less adverse effects!
And that’s not all! You will also get complete and free access to:
- A physicians directory (doctors, researchers, hospitals) that CF patients are rating, so you know who are the best practitioners in your area to choose from the CF centers listings provided by Foundations such as cff.org , The CF Trust, The Boomer Esiason foundation…
- Clinical trials matching: Be the first to get access to the most innovative CF treatments, getting matched to FDA approved trials (from leading pharma such as Vertex) in your area.
- Medical advice: No more scrolling through PubMed or WebMd- Simply ask your questions, and Cystic Fibrosis experts will answer, and provide online lectures and videos on innovative genetic research (CFTR function restoring, CRISPR gene therapy, Mutation specific therapies for f508 del, gating mutations…) and drug development (Orkambi, Ivacaftor Kalydeco, Tezacaftor, Lau-7b, Pulmozyme, Prednisone, Creon…).
- Share with your peers: in addition to experts, fellow patients and caregivers will offer invaluable support and advice on symptoms you may have in common (Lung function FEV1, thick mucus and exacerbations, CF diet/nutrition, chronic lung infections, low weight, fatigue, pancreatitis, breathlessness…).
Track and manage your health information: Track your symptoms, treatments (meds, chest therapy, antibiotics, nutrition and exercise plans) and well being over time, so you get a report with trends and recommendation about more efficient treatments. Share it with your doctor to improve your care less
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